This global coalition reframes TBI as a chronic, life‑course condition and advocates for a World Health Assembly (WHA) resolution to make TBI notifiable. The group blends diplomacy, technical evidence, and lived experience to change policy and systems.
Challenge: Lack of recognition for long‑term care needs and weak surveillance systems.
Beneficiaries: People living with TBI and their caregivers; hospitals and trauma centers; Ministries of Health; frontline providers; communities.
Current / Upcoming Projects
WHA79 advocacy and co‑sponsorship drive
Chronic Brain Injury Evidence Pack (publication)
TBI Patient Storybook (20–25 testimonies)
Member‑state technical briefs and regional diplomacy
2026 Milestones
Formal advance of WHA79 TBI resolution (May 2026)
Delivery of WHA79 side event (200+ attendance target)
Release of Evidence Pack and Storybook
Launch multi‑country surveillance pilots
How Your Support Helps us
Fund lived‑experience speaker travel or translate advocacy materials to expand reach.
Partners
WFNS, NIHR (Cambridge), Harvard PGSSC, WHO regional offices, rehabilitation networks, many patient advocacy groups.
